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Kate Morgan Reade's avatar

You're a better woman than I am, Gunga Din! I admire your empathy and patients patience, as undoubtedly that is the best way to keep hearts and minds open. As a kid whose parents were Christian Scientists, I did not get any vaccines or have any doctor visits growing up. My brother and I did, however, get measles and were out of school for about 6 weeks.

It's super ironic that I remember my mother, who was born in 1930, speaking with reverence about Jonas Salk and all the children he saved from polio. She grew up with FDR as president (her family were Methodists, I believe, and at some point adopted Christian Science.) I still don't know how she handled the cognitive dissonance.

By the age of 13, I decided that the religion was not for me. I saw too much hypocrisy, and watched my sister die from untreated (though eventually formally diagnosed) leukemia at age 21, with a desperate plea for pain relief at the end.

As an adult seeking birth control, I said to my OB/GYN, "Load me up with all the vaccines you've got," and had to reassure her that I needed the whole series. I trained as an EMT just to learn about my own body and health, feeling like I'd never gotten the owner's manual.

Fast forward to my own daughter's birth, and of course a new mom holds her breath until it's clear there is no allergic reaction, because New Mom—but it is difficult to understand not protecting your precious child against a medieval horror show of diseases. Their prevention is something parents CAN control in a world of uncertainty.

Fast forward again, and my grownup daughter is now an ER nurse. ❤️ 💉The "PRO VAX" pin she gave me is prominently stuck to my purse. Thank you for being willing to do the hard work in the trenches to save lives, Mara!

Chelsea Bingiel's avatar

Being a parent made me more sympathetic to people who get their medical information from social networks and get steered in odd directions. When I was a new mom, I sometimes felt like I wanted a nurse on call 24/7 for all the little questions I had - my mom couldn't be there for us, I didn't have anybody else that could pop in (this is leaking into the modern lack of community a lot of us struggle with). There was nobody in my life that could spend a majority of their time and energy just for me and this new phase of my life I was catapulted into. Seeking out medical help was sometimes met with an immediate wait time and callbacks hours later, for the briefest of conversations with someone who probably had spent hours dealing with a deluge of anxious parents just like me and was numb to it.

What I did have was my Discord bumper group, with 50+ other parents who had babies around the same time as our girls and were all going through the same things at the same time. We could uplift each other with the reassurance and compassion we all craved. Each time the girls woke up I also spent a little time checking in, encouraging, reassuring, and helping where I could and getting much needed replies when I was at my lows. Everybody else was awake at odd hours, so this was truly my 24/7 support line.

We also shared information. Even now as a second (third?) time mom, my pelvic floor therapy referral was instantly met with apologetic wait times into October and other avenues I could try to seek out. But, to be totally honest, I just don't have the energy to call places, be put on hold, and spend those half hours being disappointed all while trying to feed a crying baby or manage my constant list of my own bodily needs that get pushed to the side. So instead I have my bumper group, where people who did make it to PT appointments are sharing their PDFs and documents and exercises given to them by providers that I can try secondhand when I have the time.

I've probably gained some weird and inaccurate information in my mom journey, but with the current state of the world I'm not sure what could be done better. There are too many patients like me, too many anxious moms with weak bladders trying to get the attention of too few medical providers and therapists. It takes a long time to train a new physician, and there are only so many spots available for medical school and residency anyway, and my bet is that being a therapist of any kind makes too little, costs too much, takes too long, and has too much burden for people to want to consider.

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